A highly sensitive woman’s new perspective on mental illness

Thanks to all of you who have followed my blog over the years. I am, however, no longer posting here. I will keep the blog up for those of you who wish to read the posts and the wonderful comments. I will not delete this blog.

To reach me: hspwoman@sbcglobal.net

Thank you all for the support I so desperately needed over these past few years. I hope I was able to offer a bit of encouragement as well.

Life is looking up for me.

I hope you all feel better and start laughing again. No more worrying, okay? :)

Warmly,
HSP Woman

I’m still here, wanting to write because so many things have evolved since first starting this blog a couple of years ago.

I am still bald.
I am now back on benzodiazepines to help with my anxiety and panic attacks.
My depression is still around, not chronically, but often enough to be concerned.
I’ve made a move to start teaching ESL again, at home, but still it’s a step in the right direction.
I’ve adopted a dog.
I’ve lost 40 pounds, and I go to the gym regularly.
I can drive alone to many places.
I can go to the doctor alone.
I still can’t do the grocery shopping alone, among many other things….

So, you can see that many things have changed. I am eager to share my thoughts and feelings with whomever is still around. I have so many emotions about starting to take meds again. I just need to vent.

I am also angry and frustrated that I am still anxious and depressed. There are no antidepressants left on the market that I haven’t tried. I am considered “treatment resistant.”

Last week, in session with my psychiatrist, the last two alternatives treatments presented were

transcranial magnetic stimulation, and,
ECT

Wow.

I am anxious and scared.  And mad.  At myself.

Tomorrow, my husband has plans to attend a conference.  It’s very important to him, and I know that.  The problem is that I am terrified. I’ve hit a rough patch over the past couple of months, and I don’t trust myself alone all week. I feel like hiding in a closet.  Of what am I so afraid?

Agoraphobia Sucks

Of course, he usually goes to work, but this time it’s different; he’ll be (more) out of reach, most likely totally engrossed in the keynote speaker’s address. Translation: I will be on my own to fend off the panic attacks.

Over the past 15 years, he’s been there for me.  He’s learned how to relate to my panicky episodes, my lack of self-trust, my fear of abandonment, my issues with my social phobia, my fantastic imagination, etc.  He’s been there.

Lately, however, I see it changing.  His voice is, overall, getting louder.  He’s sympathy is dwindling.  Tonight, he told me my agoraphobia has made him a prisoner, too, just as it has made me.

I gasped.  My breathing stopped.  He had said the magic words I’d been dreading to hear.

I had never heard him so mean and unsympathetic.  He speaks as though he’s never heard of panic disorder before.  He says things like “That’s illogical.” And, “Yeah, and maybe some robbers will break into the house and murder you while a meteor hits.”  You know, things that a mad person yells.  He shouts that I should also worry that a plane may hit the house, just in case I hadn’t thought of it yet.

So, I am in new territory.  I hate being dependent upon him to eat, to have a job, to accompany me to the doctor and the shopping mall.  I hate myself for being so screwed up with these thoughts and phobias and horrific images.

I want him to travel even if I can’t join him.  I want him to go to this conference even though I will be here frozen in fear.

I can’t join him when I am down like I am now.  I just can’t.

But, can’t he be more sympathetic?  Less loud and mean when he speaks to me?  I gather he’s just up to his neck in frustration with my “problems.”  My never-ending fricking problems.  Yeah, I get it.  I just don’t think I would be as cold if my partner had what I had and I was as functioning as he.

Maybe I should let him be free.  I should let him find another partner who can do all the things I can’t do.  Maybe he’s already made the same decision. It really feels like he wants out.

I hope I can make it tomorrow and Tuesday, and Wednesday, and Thursday, and Friday without losing it.

Any of you who suffers with panic disorder and agoraphobia knows how I feel. Sometimes it’s better, sometimes it’s worse.

I am just in a worse part now.

I must remember it passes.  It always does.

If you are reading this during the week of June 8, 2009, please send me a little strength, if you have some to spare.

Hello, again!

I have been trying to decide whether or not to delete my blog.  On one hand, a neglected blog is anything but pretty.  Yet, at the same time, I still get some amazing comments now and then which encourage me to keep it alive.  So, for now, it will remain intact.

As would be expected, many, many things have changed since I started this blog two years ago.  These are changes I would really like to put out there and share with you.  Feedback is so helpful.  And, the encouragement… One can’t find much better encouragement than in the blogosphere (well, at least in the circles I run in ; – )

So, here I am inspired to share my latest change:  I’m bald.

Yes, you read it right!  I am completely bald now, and, you know what?  It’s not so bad!

First let me post some photos showing the progression of my alopecia areata.

My Alopecia Pattern: June 2007

My Alopecia Pattern: June 2007

My Alopecia Pattern: December 2007

My Alopecia Pattern: December 2007

My Alopecia Pattern: December 2008

My Alopecia Pattern: December 2008

As you can see, my balding pattern was slowly progressing into a “snake-like” pattern with two large bald areas over each ear and one large bald area in the back.

Here are some photos a reader named Pearl sent me a while ago.  She also has ophiasis pattern alopecia.  Thank you, Pearl, for sharing your photos with us!

Pearl's Ophiasis Pattern

Pearl's Ophiasis Pattern

Another View of Pearl's Ophiasis Pattern Alopecia

Another View of Pearl's Ophiasis Pattern Alopecia

I got fed up with trying to “hide” my bald spots.  I became a master of head movement, able to change head position with just the slightest breeze.  God forbid if the wind exposed my bald spots!

I bought hats  – lots of hats.  Swimming was the tough one though.  Or yoga. Or hiking.  Any activity that made me sweat made trying to cover my bald spots even more of a hellacious task.

Then, I found a support group called Alopecia World.   What an eye opener!  I was thrilled to come across a support group on Alopecia World called “Sisterhood of the Women Who Shaved Their Heads.”  What an awesome group of women!

They talked about finally getting sick and tired of hiding their baldness.  They talked of the freedom and the empowerment they felt once they gained the strength to just shave off the remaining bits of hair.

They talked of sexiness.  Ooh!  How sexy and feminine one really feels after taking the plunge and shaving.

I was more than inspired.  I was ready to take the razor to my head and tell the world, “Hey look!  I am bald and I am beautiful!”

On February 2, 2009, I shaved the last remaining bits of hair off my head.

I was crying with joy.  I was free.  I felt like a sexual goddess.  Really, I am not kidding!

My husband told me he would have encouraged me sooner to shave had he known how empowered I would feel.

He has been so kind, so supportive.  I am grateful for him every day.

Of course, I also was fitted for a cute little wig, too.  It’s really pretty, but super itchy and uncomfortable.  I will wear it from time to time. Sometimes I wear bandana-type things, too.  Or a hat.  I like hats, too.

But, NOTHING feels better than being totally natural.  I can move in the wind without worrying; I can hike without apprehension; I can swim without self-consciousness.

I am free.

It’s ironic that someone with Social Phobia, Panic Disorder, and Agoraphobia would be so willing to “stand out” in a crowd, isn’t it?  This, I cannot explain. But, I feel like me again. I’ve suffered since I was 12 years old with alopecia. It took me until I was 41 to take charge of it.

Better late than never!  Just to be clear, there are moments (of course) where I feel shocked and pitiful.  I wish I could have a full head of hair, but I don’t.  If it grows back completely, I will be thrilled!  But, alas, I am not convinced this time it will.  And, that’s okay.  It’s even okay if I choose to only wear wigs some day. Maybe I will. But, for now, I love the option of being bald, being free.  Or even wearing a wig like a hat.  I don’t try to hide the fact I’m bald.  My wig is just another hat.

My alopecia has gotten worse, but I am a 1,000 times more positive about it.

If you have alopecia, please don’t despair.  There is some amazing power in being bald.  I wish I could bottle the feeling.  I’d be a millionaire!

I received a comment today, and I am not sure how to best answer it.

I was hoping community members may be able to better give advice than I.

Here is Ashla’s comment:

i am new here and i am very nervous, i have big problems , i found out i was pregnant two mths ago or two and half , we didnt know if we would keep it, i got stressed , found valium, i was on valium low dose for about four or five weeks, stopped for two days, decided we want the baby i am 38 but now i want the baby, i had to get an hiv test and freaked out as i am an addict, embarrased to say, i havent used iv in yrs but havent had a test either, i am also on subutex which is a no no with benzos , i am also on probation, when i had to get my hiv test i freaked and bought benzos xanax and was taken one to two mgs for about two weeks now, i took my last today, and i am scared, i am afraid i will have a seizure or something, and the baby will die, if i tell the obgyn i am addicted , they may try to put me in rehab , then probation finds out, also the subutex dr will, i have been on low dose benzo for about two mths and a week now, i dont know what to do, i have been so freaked out reading on the internet for days and that is all i do worrying about this, i bought valerian root mellanonin today and gabba today to help me tomorrow, i am really scared and have noone to turn to sorry for being so long winded ashla

It’s in cases like this I wish I were a doctor or a psychologist.

We are on your side, Ashla.

Please, any advice would be greatly appreciated by Ashla, I’m sure.

It’s been a while.  I’ve missed you.

I need to connect.  I must force myself to reach out.  If I don’t, before I know it, I’m in another depression.

I thought I’d jump right into the middle of my recent life.  I have been working on that, you know, starting things in the middle.  Preparing, researching, studying, gathering — it’s my well-worn safety net. In my world, it’s hard to start something without a plan.  A perfect plan at that.  It’s hard to trust myself enough (and others) when only 80% prepared.  But, I’m working on it.

So, now, I write without a plan. (Well, honestly, I write with only an 80% plan.)

Why do I need to write?  Why today?

Because, I’m terrified.  And, I think it will help to expose the thinking that’s holding me down and to spotlight the progress I have made since my last post.

Again, why am I terrified?  Because, tomorrow, I am scheduled to fly to my parents’ hometown for the holiday.  No joke. Me. Miss Agoraphobia. Yeah. Me.

Wait, my bravery gets even better, especially for those readers who know me from ages past.

While I’ve been away from this blog, I have been working overtime trying to conquer my agoraphobia, fear, panic attacks, excessive worry, and depression.

In case you’ve just stopped here for the first time (welcome!), here is where I was about 10 months ago.

However, in the past few months:

• I have gone to the large, popular, busy grocery store alone maybe 10 times.  I have tried going both during peak and non-peak hours.  I survived it — with groceries — each time.

I actually bought more than one item.  This is food for my family that I bought all by myself.

My shopping cart. I actually bought more than one item! This is food for my family that I bought all by myself. Wasn't easy, but I did it.

 

• I have gone to a book reading in a completely unknown part of the city.  I enjoyed it in spite of almost canceling at the last minute due to panic.

A book reading in a trendy part of San Francisco.  I even asked the author a question!

A book reading in a trendy part of San Francisco. I even asked the author a question!

 

• I took a train through the redwoods.  I had been avoiding this 1.5 hour train ride since the day we moved here about four years ago.  I panicked as soon as I boarded, but 10 minutes later, I was feeling more at ease.  

I was in the back, under the covered part.  I think it's easier to hide this way, just in case I panic.

I was in the back, under the covered part. I think it is "safer" to be there, covered, in case I panic. I like the back of groups, any groups. Superstitious, I know.

 

• THE BIGGIE: I signed up — and showed up! — for a Fear of Flying Clinic at our local international airport.  I wish I had a penny for each time I convinced myself I couldn’t hack it, that I shouldn’t go.  I went.  I panicked.  I laughed.  I GRADUATED!!

 

Night before Fear of Flying course began.  Husband and I went to airport to get some exposure to what I have really feared most -- flying by plane and all things related.

Me, the night before Fear of Flying course began. My husband and I went to airport to get some exposure to what I have really feared most -- flying by plane and all things airport related.

 

During the Fear of Flying Clinic (which was a four-day seminar over two weekends) I practiced so many things that I usually avoid, such as:

 

• Taking the hotel-airport shuttle bus.  Three times!

Staying in a hotel was already a huge challenge!  But, I pushed myself to get on the hotel shuttle bus to the airport. Stepping on that bus was nearly unbearable, but I did it.  I also did it another three times!

Staying in a hotel was already a huge challenge! But, I pushed myself to get on the hotel shuttle bus to the airport. Stepping on that bus was nearly unbearable, but I did it. I also did it another two times!

 

• Walking through nearly every inch of the airport terminal. Mingling with people standing in line at the ticket counters. Taking airport elevators. The anxiety peaked and subsided. Peaked and subsided. Finally, it just melted away to a really manageable level.

 

We walked from one end of the terminal to the next. I went to one tunnel of the terminal where just last May, I could not walk through.  Period.  This time I skipped through.  I panicked, but I did it anyway.

We walked from one end of the terminal to the next. I went to one tunnel of the terminal where just last May, I could not walk through. Period. This time I skipped through. I panicked, but I did it anyway.

 

• Going to the United Air Lines Maintenance Base with the Fear of Flying Clinic.

I was so nervous and sick before. This was on the second day of the clinic. The first night, I literally slept only one hour. The second night was a bit better, but not much. So, being tired and going to a place that is normally off-limits to the public lowered my panic threshold a bit.

We arrived, showed personal identification, had to wear badges and stay together, or else! Then, before getting going, by big butt tripped an alarm! The security team was shouting and everyone looked at me at the same time. I had a major surge in panic (and even thought, “Okay, this is it. I’m going to jail.”  Of course, nothing happened).

The panic was pretty intense for the first hour of the tour. But (now hear this all my fellow panic sufferers!) I still used my voice to speak to the group. I did not retreat. I let the anxiety come along with me. I more than survived. It was so empowering!

We also got to board a stationary plane. My panic hit me full force as I climbed the stairs to enter the plane. Nevertheless, I did not retreat. The class got to look around, go into the cockpit, and do a progressive muscle relaxation exercise while on board. This opportunity to get on a real plane (in these times, too!) made this class perfect for someone like me — someone who needs to get lots and lots of practice in vivo to ultimately feel less panic.

 

We got to talk with maintenance engineers, pilots, flight attendants, graduates of the clinic, and more.  I had many panic attacks, but I learned so much. It was worth every second of panic.  I'm totally serious.

We got to talk with maintenance engineers, pilots, flight attendants, graduates of the clinic, and more. I had many panic attacks, but I learned so much. It was worth every second of panic. I'm serious.

 

• I took a graduation flight to Palm Springs, CA (about 1.25 hour flight from San Francisco). I FLEW!

Here’s the plane I was on just moments after taking this photo.

This is the vertical stabilizer of the plane the class flew on for graduation flight!

This is the back end of the plane the class flew on for the graduation flight!

 

The flight was delayed while we were already boarding because they were waiting for someone whose connecting flight was late.  And, it was packed; every seat occupied.

To top off the experience, the rainy weather had slowed down take offs.  Our plane was 12th in line for take off.  Oh. My. Gosh.  Everything that I feared came true.  But, I made it.  I survived.  I even had moments of relative calm in between my 5-6 panic attacks.

The return flight was even better.  Not totally panic free, but still better.

Really, everyone who fears flying, it’s doable.  Not easy, but it’s doable.  I promise. If I survived, you will, too.

 

• I looked out the window on the return flight to see this gorgeous view welcoming and congratulating us.

The gift for the class as we returned to San Francisco.

The gift for the class as we returned to San Francisco.

Then, guess what I did two weeks after our Fear of Flying Clinic graduation flight?

I booked another practice trip to Orange County airport (about one hour flight each way). Can you believe it?!

What else have I done despite having panic attacks?

  • I’ve joined a health club with a pool!
  • I’ve been shopping at the area’s largest, busiest mall.
  • I’ve gone to the mall alone.
  • I’ve taken my cat to the vet.
  • I’ve eaten in 5-6 new restaurants.
  • I’ve hosted a dinner party for 6.
  • I’ve reached out to old friends on Facebook.
  • I’ve gone to the doctor’s office, alone.
  • I’ve gone to the hair salon, alone.
  • I’ve driven to my husband’s office that’s about 40 minutes away, along a very curvy road.

I am so proud of myself, really, I am.

And yet, here’s where fear is creeping back in.

Lately, because of the ACT (acceptance and commitment therapy) workbook I’m reading, I have had the personal power to do what I care deeply about (like travel, see far-away family, feed my family, connect with people in my community) and not try to manage or control my panic attacks.  Control doesn’t work.

I’ve realized that my old coping strategies aren’t very helpful because I still have panic attacks.

So, I have had the courage to go forward and stop avoiding doing things until I feel better.  Really, the only way to feel better is to do things we value, things we love.

What has avoiding panic really done for us?  NOT MUCH.  We still panic at home as our worlds get smaller and smaller.

Do I want to be remembered as “She really worked hard fighting panic.”?

Or, do I want to be known as “HSP Woman lived a full life.  She had lots of panic attacks but she still did all the things she loves: swimming, laughing, connecting with people, learning, sharing, traveling.  She was much more than her anxiety.”?

Seriously, do we want to be defined by our anxiety disorders?

I really, really don’t.  But this is the difficult part.  My “willingness to feel whatever I feel, think, imagine and still continue doing what’s of value to me” is pretty difficult to sustain.

In order to do all the wonderful things I have done in the past three months, I have had to be willing to allow my panic to come if it pleases.  Who says a life without struggle is more valuable?  I’m not sure that struggle and pain aren’t just as valuable as joy and pleasure.

Why then am I now struggling against allowing ALL my feelings, thoughts, body sensations, memories just be what they are: words, thought, images, sensations.  These events aren’t me; they’re just part of me.

I guess this flight tomorrow is allowing doubt and mistrust to enter my heart again.

I need to turn on my willingness switch like it had been while I did all those challenging things.

Before the graduation flight, I was a nervous wreck the week prior. I had all my self-help books sprawled out on top of the table. I downloaded three “relax and breathe” CDs from iTunes. I meditated every waking second. I cried. I tried to back out. I got physically ill. I didn’t eat well. I didn’t sleep well.

The second flight was a little less intense in the days before.

But, at the airport gate waiting to come back home, I felt different. I was more afraid of myself. The graduation flight included most of the class, in addition to a licensed psychologist and many successful graduates on board with us. Maybe I felt safer in that the therapist could explain to all the passengers I am really not psychotic as I run naked up and down the aisle screaming!

And, on that last return flight, I really panicked while getting on the plane, worse than the other three flights.

Then, as I sat down, I had a real moment of total acceptance.  Total acceptance of whatever thoughts, images, body sensations came my way.  And, it was during this moment of total acceptance that I had about 5 minutes of complete calm.

It was wondrous. Peaceful. Safe.

Of course, my old thinking crept in and took my tranquility and willingness.  But I did have it for a short time.

It’s funny.  After both these round-trip practice flights, I fell into a depression upon returning.  It passed a couple of days ago, but now I am depressed that I am still anxious to fly even after my course, my preparation, my therapy sessions.

Part of me believes I should be over this fear by now.  Enough already!

Part of me is panicked because I haven’t been furiously studying my coping skills and acceptance workbook.

Part of me wants to take the road of least resistance, to stay home and avoid everything!

I guess what I really am afraid of is that I am not 100% prepared.  Yet, it’s impossible to be 100% prepared. No wonder I have panic attacks if that is the underlying belief I have about myself.

Okay.  Let me say it.

Eighty percent is enough.

Eighty percent is enough.

Eighty percent is enough.

I don’t want to stress myself out even more by speed reading five self-help books tonight.  I think I need to focus on self-care — a healthy dinner, some funny TV, a nice epsom salt bath…

Tomorrow, I can try to pack lightly, not worrying about everything under the sun I may need. There are stores where I’m going.

And, I will breathe.  Like now, I am breathing deeply and evenly.  Nice.

I’m ready for this flight.  More significantly, I am willing to experience whatever I experience while waiting to board and while flying.

I want to fly to Nevada to see my parents.  I want to spend Thanksgiving with them after so many years of not being able to.  I want to spend my 14th wedding anniversary having fun with my husband.  I want to see people of the world again.

These are things I value.  Panic is not dangerous, just really uncomfortable.  Accept it with compassion.  It will pass, it always does.

Do I want panic to keep me stuck in the house forever?  No.  Do you?

I am committed to living a value-driven life whether or not panic wants to come along.

This is the bottom line.

Keep me in your thoughts tomorrow, please.

Wow!  Two posts in one day.  It’s a record.

Speaking of records, you must check this out.

It’s a song written especially for when you’re feeling anxious or panicky.

I love it! Really clever. Catchy, too.

What do you think?

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