A highly sensitive woman’s new perspective on mental illness

Almost Benzo Free!

Posted by: HSP Woman on: July 16, 2007

It’s been two weeks since I started my final tapering off of Valium.

I’m so close to benzo freedom, I can taste it, feel it, envision it. Let me tell you, benzo freedom tastes a whole lot better than the bitter drug water I drink every night!

Here’s a quick recap of how I got to where I am today.

I started a crossover from Xanax to Valium back in September 2006. I switched to Valium because it has a much longer half-life than Xanax, and, therefore, fewer withdrawal effects between doses. I was taking about 3.0 mg of Xanax daily, or the equivalent of 60.0 mg of Valium. Once the crossover was complete at the end of November, I started to decrease my dose by anywhere between 1.0 and 5.0 mg every few weeks.

I’d decrease on a Thursday by whatever amount I felt was possible — less when I was overwhelmed or really anxious, more when I was feeling stronger. By the following Sunday after a “dry cut” (decreasing dose by using a pill cutter), I’d really start to feel the effects. It’s strange. It was almost always exactly three days when I’d feel the worst. Also, Thursday was the best day to start a dry cut, because it meant my husband would be around on the weekend to help talk me through the start of that cut’s withdrawals. It helps to have a great support person around when you decide to make a cut.

I had a lot of withdrawal effects as I got lower and lower in dosage. I hit a plateau around 9.0 mg, and another around 5.0 or 6.0 mg. That means I tried to stabilize at these doses for as long as it took to start feeling better again. Of course, when I say “better again,” remember this is all relative! We’re talking “Benzo Withdrawal Better.” That’s a whole lot worse than a person not on benzo would feel. But, nevertheless, I would eventually start to see “improvement” at each new dose!

Finally, once I reached 4.0 mg (2.0 mg morning and night), I just couldn’t go on with dry cutting. I would start feeling the withdrawal effects much sooner than the usual three day grace period! (Usually within 24 hours.) That’s when I knew I must start tapering using the water titration method. The only way I could go under 4.0 mg was to suspend a 2.0 mg pill in some water and drink a partial volume each day. (I still took a 2.0 mg pill each night.) While water tapering, I decrease the dose by only about 2.0 percent each day. It’s slow this way, but that’s exactly what benzodiazepine withdrawal should be — as they say, slow and steady wins the race!

I decreased from 4.0 mg to 2.0 mg by the end of May 2007. I’ll tell you, it wasn’t easy. It was much less traumatic than dry cutting, but still, it was a huge psychological adjustment. There’s no denying it. I wish I could say it was effortless. I really wish I had known that it was going to get worse before it got better. Live and learn, I guess. Yet, despite every fear I have faced and every physical pain I’ve endured, deciding to quit benzos was the greatest decision I’ve ever made. I’ll never regret this leap of faith I took.

I stabilized at 2.0 mg for two months; I held steady. Many people who are very familiar with benzo withdrawal would say holding at a dose for two months is too long. The longer one stays at the same dose, the greater the chance one can become tolerant yet again. Then, once tolerant, whether one is holding at a dose or not, one will start to feel withdrawal effects between doses. For me, interdose withdrawal manifested itself as moodiness, agitation, intolerance, rage, panic, depression, lethargy, vertigo… the list is long. Is there any wonder my psychiatrist thought I was no longer only suffering from panic disorder with agoraphobia? To him, I appeared to fit the diagnosis of bipolar II, ultra-rapid cycling. To me, too. To everyone, in fact. But, it’s amazing — being almost medication-free, I no longer exhibit such symptoms. I really have to wonder how much my medications first prescribed for panic attacks ultimately transformed my primary diagnosis into something it wasn’t.

Back to the tapering: Finally around the last part of June, first part of July, I started feeling so much better. I was still exhausted, but at the same time, I was more positive, more confident, and much less panicky. My dreams were less vivid and violent. My dreams are really my own personal gauge of “How I’m Doing.” If I am dreaming of being chased and violated, then I am in active withdrawal. If I dream I am on a plane without my medication and I panic, then I am in the active stage of withdrawal. If I wake up in a panic, I’m not ready to make another decrease. I need to hold steady until I fall asleep without any help from sleeping aids (like Benadryl, melatonin, or Calms Forte). I agree with the withdrawal experts that relying on sleeping aids — natural or not — is not a good strategy. But sometimes this is the only way I can remain functional. Sometimes we need a little help, and as long as it’s only for a few days, it’s okay.

So after some days of feeling well and having more tranquil sleep, I knew I was finally ready to leave third base and head for home!

I have prepared myself well for this last stretch. I asked my husband to take over the majority of the family chores. He agreed to cook, pick up food, clean up, take care of the pets, shop — anything and everything. I cleared my calendar once again (except for my coaching sessions by phone). I did away with as many obligations as I needed to make this last step as easy as possible for myself.

The first couple of days were not too bad. Then, as expected, around the third day I started feeling a bit of the “tight chest.” My dreams became more graphic and frightening. The one thing different this time is that I haven’t panicked. I’m anxious sometimes, but I’m not panicking. I even went out to a couple of restaurants since starting the final taper. I did well! No serious panic surges. A little bit of the swallowing thing (when I get nervous, it’s hard for me to swallow food), but other than that, I actually had a good time!

Last night, I drank 72 ml of drug water. I tossed out 28 ml. That means, as of yesterday, I only ingested 1.44 mg of Valium. Can you believe it? I am so proud of myself I could just do a little dance! But again, the best part is that I feel better! I am not ready to get on a plane or anything, but I honestly feel better. I am less tired, less moody, less anxious. My dreams are still whacked, but that’s a small, temporary price to pay. And, usually it’s not until around 10 or 11:00 PM that I remember to get my “chemistry set” out and concoct my drug water. I am starting to not associate myself with medication. For many weeks now, I have left the house (usually with my husband, but it’s still a good start) without any “emergency benzos” hidden in my purse, panties, or socks. I would have never believed I could leave my house without medication. Never.

I still have about three weeks of tapering. Three weeks! That’s nothing after 18 years of medication. I expect I’ll have some set back at times. That’s okay because I realize benzo withdrawal and healing from psychotropic meds is not a linear process. The healing journey may not be perfectly linear, but the general direction is consistent!

Don’t Look Back!

Don’t Look Back!

I am heading towards a life less affected by external manipulation. I am no longer going to consistently demonstrate behavior and thoughts that are not organic to me! Just think. Within a month, everything I perceive, everything I think and do, all of it will be generated by me, myself, and I. No longer will I behave or feel a certain way because it’s a side effect of medication.

I can’t wait to see how the real me thinks, acts, responds, and reacts… It’s a brand new discovery so worth the price of admission. I’d rather feel the effects of withdrawal for a few months or years than exist the way I did while ingesting (dutifully and hopefully) my “medication cocktail” of Seroquel, Lexapro, Trileptal, Xanax, and Klonopin.

If I had to do it over, I would have started my drug cocktail tapering with the benzodiazepines. I started my withdrawal process with the Trileptal. Next was the Lexapro. Third was the Seroquel. Fourth was the Klonopin. I have to wonder if some of the benzo withdrawal pain would have been ameliorated by having some of the mood stabilizer/antidepressant/antipsychotic on board? Well, that’s water under the bridge, thank the universe.

I am just so grateful this process is nearly over that I can hardly contain myself. I feel so proud of myself! The most important message: if I can do it, anyone can. Incremental change is sometimes so hard for me (or anyone) to swallow. But even the smallest increments eventually add up to one huge difference!

21 Responses to "Almost Benzo Free!"

Congratulations!!!!!!!!!!!!!!!!!!!!!!!!!

Wow!

Way to go! Good for you. I’m impressed. :-D

Hi there, A&A

Your support means everything to me. Thanks!

Wow, such amazing bravery! It takes a very strong person to actively face their fears and to face the unknown – well done. You just know everything is going to be okay, because you know you can handle anything! You’ve come so far… keep up the good work!! :)

i love the way in which you always recap the whole process for us! this is an extremely user friendly blog, HSP woman, and, clearly, you’re writing for others, not just yourself. it’s very comforting to have your expertise and generosity at my fingertips. thank you!

it’s great about the w/d, and great that you’re feeling so incredibly well. i’m so glad!

you know, i never became tolerant to the benzos. not at 1 mg of klonopin, not now, with 6 mg of valium. if it weren’t a hassle (reason why i decided to get off them in the first place, because it’s a tremendous hassle) i’d just stay on the freakin’ drugs. you’re right, we are all different. this is so interesting, because the whole psychopharmaceutical culture is built on the idea that we are all the same. bollocks.

way to go!

Dear HSP,
Congratulations and you are indeed an inspiration to me! I too have been waiting to do the benzo last. And I’ve gotten off an antidepressant, seroquel, 200 mg of Lamictal (200 more to go) and 9 3/4 mg of Risperdal (1 1/4 to go) (much like you)

I’ve decided I will not wait for the benzo now. I’m going to go ahead with it because I do think it’s making me the sickest of all my drugs. (I am going to do one little detour and get off 1/4 mg of Risperdal first, just to save me from having to buy two expensive doses of Risperdal–I’ll only have to buy one this way)

I’m hooked up with a woman who is a Klonopin water taper expert who is giving me a mathematically formulated taper schedule. I have yet to see it, but it’s supposed to be a very slow steady taper. Of course I will bound myself to no schedule but my own bodies, but I’m hoping this schedule will help me navigate a bit.

You write:

I really have to wonder how much my medications first prescribed for panic attacks ultimately transformed my primary diagnosis into something it wasn’t.

This is a phenomena that happens again and again. If not benzo’s that cascade into multiple diagnosis, then it’s antidepressants that do it.

I too started with one drug and ended up on 7 at one point. It’s an insane practice that must stop.

It’s so great to see someone do it ahead of me you are a trail blazer!!

Hi LazyHouseWife,

Nice to see you again! Thanks for the cheer! I really am working hard on learning to face my fears. I’m just tired of them. I’m tired of being their servant. I love the expression, “Everything’s going to be okay.” My Dad tells me this when I get really down. I always feel better when I hear this. It’s such a simple sentiment, but, for me, it’s so powerful.

Thanks! I appreciate your comment!

this is so interesting, because the whole psychopharmaceutical culture is built on the idea that we are all the same.

Absolutely. It believes that not only are we, as humans, the same, but we are the same as other animal species!

Scientists get so excited doing animal models of “mental illness.” If there is intraspecies variance, imagine how much inter species differences there are!

I too started with one drug and ended up on 7 at one point. It’s an insane practice that must stop.

Dear Gianna,

Wow. How many of us are out there? I think myself to be a relatively intelligent, educated, street-smart person. Why and how did I allow myself to be so violated? Why was I looking outside myself for validation and reassurance? Why was I allowing my emotional experience to be labeled as a medical experience? (And a pathological medical experience at that!)

I wish the internet had been as mature as it is today when it first happened to me. The young men and women today have a great opportunity to find older “survivors” like us and stop their pain before it snowballs.

I must find statistics on the percentage of people who start on one psychotropic medication and eventually end up on two, three, four, five, six, seven, or more medications in their “cocktail.” The numbers have to be out there! Also, I’d like to see these statistics broken down by gender. Something tells me more young women are being poly-drugged, but I could be wrong. Maybe it’s just that more women blog about it.

Very frustrating indeed.

ah, we think alike:

Wow. How many of us are out there? I think myself to be a relatively intelligent, educated, street-smart person. Why and how did I allow myself to be so violated? Why was I looking outside myself for validation and reassurance? Why was I allowing my emotional experience to be labeled as a medical experience? (And a pathological medical experience at that!)

I wish the internet had been as mature as it is today when it first happened to me. The young men and women today have a great opportunity to find older “survivors” like us and stop their pain before it snowballs.

I’m so happy for you. I know exactly what you are talking about, and I can’t wait until I’m at that point myself. You rock!

Hiya, Bloggrrl :smile:

Nice to hear your encouraging words! Thanks! Are you planning on tapering off of your benzos soon?

I mean, Bloggrrl, tapering to zero? I know you are about one month now Klonopin-free? Is this right? How’s it going for you?

I remember you had a little Xanax left. Have you decided to hold steady at this dose until your Klonopin withdrawals stop?

Are you experiencing any Klonopin withdrawals?

Yay for you! Hang in there!

I’m still feeling shaky from the Klonopin withdrawal, and unless I spend some serious time working out, I can’t sleep at night. I’m actually on my 25th hour of being awake right now… So presently, I’m just trying to stay off the Klonopin. Once I get comfortable, I’ll decrease the Xanax, because getting off all of it is the goal. I’d love to begin remembering things again, instead of walking around in some sort of fog.

Give it some time, Bloggrrl. I can guess that your insomnia is due to the Klonopin taper. Also, maybe because your doctor decreased your dose too quickly, as you mentioned.

Some people who withdraw too quickly find it best to reinstate some amount of the Klonopin, restabilize, then start a very slow water taper. When I dry cut Klonopin, Xanax, and Valium, I’d always have a lot of trouble sleeping even a wink. The water taper is much more gentle. I may toss and turn a while, but I always eventually do fall asleep.

Yeah, I’d hold off on starting a taper for the Xanax. That’d be just silly and miserable. Yucky withdrawal symptoms…

But, I promise you, with time and perseverance, the “benzo fog” will lift. I feel so much better already, even though I still have a bit to go. You’ll see! Slowly, slowly your brain starts to function better, you’ll get more energy, you’ll feel healthier!

Thanks for sharing, Bloggrrl!

I’ve never ‘blogged’ before, so I’m not sure if this will get through or not – I don’t know what to put under ‘website’.
I’m an HSP – one quarter point away from being an SSP (the ’super’ variety). I’m going to be visiting a counselor soon to discuss meds, and I’m frustrated. I’ve tried before to explain the HSP thing, but I think I was talking to a wall – actually, to the back of a computer screen, since she was typing on the computer the entire time I talked.

I take the smallest dosage of Xanax (.25mg) but not every day. At times I have to take 2 in order to sleep. I don’t want to take them every day, but I don’t want to give them up either. I need the meds whenever I become overstimulated, especially at night – going to a play, visiting with friends, talking on the phone – in order to stop the physical and mental ‘buzz’ and go to sleep.

Any suggestions?

Welcome, Joy!

Yes, your comment absolutely got through. Thanks for stopping by! The web site field is a place to add your blog’s URL or your web site’s URL. That means when you leave a comment, your user name will be linked to your site, if you had one. Anyway, you did it just right. :smile:

I am glad to meet another HSP. I’ve never heard the term SSP, but I guess I am one, too. I have a very strong theory that there is a large faction of women in the mental health “system” who do not benefit from psychotropic medications, like benzodiazepines, antidepressants, mood stabilizers, etc.

I am one of these women. I truly believe HSPs who are not taking care of themselves and their HSP-ness are sucked into a mental health system that doesn’t help, but rather, does harm.

I absolutely get what you are saying about wanting to turn off the negative overstimulation with Xanax. But, in my 18 years of taking Xanax and everything else, I never got better. My overstimulation got worse.

My suggestion is to look into getting coaching with Jenna Avery or Elaine La Joie. These are my two life coaches who deal specifically with HSPs. I have met with them over the phone for almost two years. I never accepted that I was HSP until having sessions with them.

I never considered stopping the benzos until I had about 6 months of sessions, in fact.

If the therapist you’re seeing suggests medication, be careful. If you are not feeling better with the medications, then maybe you should consider the idea that HSP-ness doesn’t necessarily require medicating away.

There are so many ways to cope with overstimulation other than medication. And, as many in the blogosphere will attest, starting with one medication usually is the beginning of many, many unsuccessful runs with numerous medications.

For HSPs, taking even the most benign over-the-counter medication can be enough stress to our systems to make overwhelm inevitable. Imagine what can happen when one takes a mind-altering drug!

Please try and keep an open mind. HSP is not a disease that can be cured with psychotropic medication.

If you’d like to contact my HSP life coaches, their links are in my side bar!

I wish you peace, Joy. I really know well what you describe.

Let me know what happens, as one SSP to another!

Joy,

One more thing. I would immediately find a new therapist. Taking notes on a computer is a big no-no, especially for an HSP. You need total attention and sincere connection.

That’s just not right. Please find someone to listen who really listens. You deserve that!

And, you must get a therapist who is knowledgeable about HSP-ness.

(Jenna, my life coach, is a great place to start. At least, check out her web site. She’s got a ton of stuff there about HSPs!)

Thank you so much for your comments; I will get in touch with Jenna with the hope that she can help me find a therapist who understands.

I didn’t give much background in my previous entry. I’m 61 and have had problems with what was diagnosed as anxiety and, more recently, depression for many years – with the added problems of insomnia. In general I’ve stayed away drugs until the past few years. I retired early from teaching because I was always ill – due to stress. Since retiring 7 years ago I’ve worked half-time at a school, on my own schedule – no more chronic bronchitis!

At times, such as when we have a lot of meetings at school (which requires a lot of interaction with lots of people), or when I teach an evening class to teachers, I need the Xanax in order to sleep. Not sleeping is a major concern for me. I’d like to find a way to contiue to do these activities w/o meds, but I’ve tried a lot of things over the years. Since menopause, I’ve also been on Prozac, which appears to work well for me. Clinical depression is the pits! SAMe and 5HTP helped me, but the expense was considerable. (My mom was bipolar; my depression is more chemical than situational).

If you do an internet search for Super Sensitive Person, you’ll find a questionaire to see if you qualify as an SSP. A score of 70 or higher is considered SSP; I ‘only’ got 69 and 3/4 the day I took it!

I’ve found that my sensitivity has gotten ‘worse’ – ’stronger’ – certainly, more challenging – as I’ve gotten older. I’ve found that I must spend a lot of time by myself; we fortunately have a place in the mountains where I can do that – and my husband stays in town – Yea! My dog and I enjoy lots of long walks and ‘down time’ together.

Thanks again for this connection. Just having an understanding soul to connect with is so valuable. Thanks – Joy

Hi again, Joy :smile:

I hope you can work with Jenna. The first part of her three part program is what really changed my life. It’s priceless. If you can’t do the entire program, try and do Phase I. I promise you a life-altering event!

I was a teacher, too. I had to stop teaching much earlier than I ever dreamed. My depression and panic disorder were through the roof. It’s good you can work part-time, at your own pace.

That is a very good self-care coping skill you implemented there! Yay for you! HSPs really need to work very differently from non-HSPs.

Joy, I’d love to keep on connecting with you. You sound like a beautiful person. A sensitive, caring woman. It’s just perfect that you’re drawn to nature. Most HSPs are. Without nature, we wither, we die…

Please keep me posted. I tend to be a little slow responding at times. This benzo taper has been the pits!

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