A highly sensitive woman’s new perspective on mental illness

Coping with Coming off Psychiatric Drugs

Posted by: HSP Woman on: August 17, 2007

Here’s a taste of an eye-opening article called Coping with Coming Off.

It’s about the experiences of people getting off of psychiatric medications. It highlights the lack of information and support for people wanting to stop taking medication.

The drugs mentioned in the report:

• SSRI antidepressants (Serotonin Specific Re-uptake Inhibitors). A similar drug, Effexor (venlafaxine) has been included in this group.
• Neuroleptics, also known as antipsychotics.
• Mood stabilizers.
• Minor tranquilizers, which includes benzodiazepines.

Why did the participants in this report want to stop taking psychotropic medication?

The most common reasons given for wanting to come off drugs were disliking the adverse effects of taking them (60%) and not wanting to be on them long-term (53%).

Other interesting points in article:

• Where doctors were involved, they were the least likely to be found helpful of any group of people. [Only] about half the people who sought or received help from a doctor found them helpful.

In contrast, around nine out of ten people who sought help or support from a counselor or psychotherapist found them helpful.

• Of the people interviewed, over half experienced difficulties in coming off their drugs.

The most common difficulties were anxiety, difficulty sleeping, and depression. Those coming off SSRIs were more likely to have difficulty coming off than people on mood stabilizers or neuroleptics.

• The biggest factor in influencing success in coming off was length of time on the drug. Four out of five people who had been on the drug less than six months succeeded, compared with under half who had been on it more than five years.

• When people who succeeded in coming off their medication were asked about the benefits, they most often said: better mental ability, feeling more alive, having taken back power and control, no longer experiencing the adverse effects, and feeling good about managing without the drugs.

“There is a desperate need for information for people who want to try coming off medication, and or informed support from mental health professionals and families and friends so that the process can be as safe and effective as possible. This report should be essential reading for anyone who takes or prescribes psychiatric drugs.”

David Crepaz-Keay,
Senior Policy Advisor, Mental Health Foundation

Click here
to read Coping with Coming Off.

13 Responses to "Coping with Coming off Psychiatric Drugs"

“Mind” the British organization responsible for this study is wonderful. I’ve posted stuff from there site before. I may use this info you shared with us at some point–citing you as my source of course!

thanks for the heads up.

Hi there, Gianna :smile:

Yes, this group seems very positive. I’d like to check them out more. Interesting report, isn’t it? (Not like we didn’t know it first hand, unfortunately.)

Go ahead and elaborate upon it! Absolutely no need to cite me as anything. Use the link I provided, and check out the primary source. I just listed some points (of many) that stood out for me. There is a ton I didn’t even mention that deserves mentioning! Go for it! You will do it justice. You are such a great writer.

thanks for posting this. so encouraging to know that there’s so many of us wading upstream out there! we are a movement!!!

PS i love your ad for kiva! you rock, HSP woman!

So great to hear from you, AMA.

Thanks so much for checking in. We are a real movement, aren’t we?

You noticed the Kiva shout out? :smile: Kiva is wonderful. I’m glad to pass on all the good they do.

I think most antipsychotic drugs just dull the symptoms.
Sort of like turning the volume down on a TV that has a lot of static noise.
For acute situations medications can offer great relief but patients need long term solutions.
I think simple things like good sleep, food, low stress can really help…http://axis1.wordpress.com/

[...] 19th, 2007 by giannakali HSP woman turned me onto a study that Mind, an organization in the UK has published. Mind has done a great [...]

Well I went ahead and did the post–I mostly took stuff right off their study. (and I did cite you!!–of course I did–I want my readers to know you too!)

Welcome, Petryan

Thanks for the comment. I agree that psychotropics in general (including antipsychotics) just are attempts at symptom relief. Some of the time, the drug does indeed quiet symptom X, but the cost can be great, as it was in my experience.

I don’t think I am alone when I say that I thought by my taking psychotropics, my life would suddenly become like most peoples’ lives around me. But, as we all know too well, symptom management is not the same as a “cure” (as many professionals lead us to believe).

Like AMA and you write, I agree that medication can be very helpful in acute/PRN/as needed bases. And some people may choose that the benefits of symptom management is worth the cost of adverse effects.

I am learning how to deal with my panic attacks, agoraphobia, emotions, etc without psychotropics now. I am trying the things you mention, and more! Like you said, psychotropics are not always the best long-term solution. At least in my case.

I look forward to checking out your blog! :smile:

Dear Gianna,

Good for you (and good for us — your readers!)

I’m heading over right now. Thanks!

Hi HSP woman!

Belated congrats for your success in coming off psych drugs.

A study, about a year ago, into the efficacy of drug treatment for people with mental health problems had an unexpected outcome….

The placebo group had improved more than the group taking psych drugs!

Robert

Hi there, Robert.

Thanks for the congratulations :smile:

Nice to hear from you again!

Great Blog. Tons of help. I am weaning myself off of Zoloft now, and looking forward to coming off of Xanax next. I’m looking forward to revisiting my old self in all of her glory and pain.

Welcome :smile:

How’s the Zoloft tapering going for you? I tried Zoloft for about five days. I couldn’t stomach it — literally!

Xanax tapering was more difficult for me compared to the Lexapro withdrawal. What made it doable for me was first crossing over to Valium, then tapering VERY VERY slowly.

I wish you the best.

I am sure your former, psychotropic-free self is just wonderful!

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