A highly sensitive woman’s new perspective on mental illness

Oh, Lovely Agoraphobia!

Posted on: June 7, 2009

I am anxious and scared.  And mad.  At myself.

Tomorrow, my husband has plans to attend a conference.  It’s very important to him, and I know that.  The problem is that I am terrified. I’ve hit a rough patch over the past couple of months, and I don’t trust myself alone all week. I feel like hiding in a closet.  Of what am I so afraid?

Agoraphobia Sucks

Of course, he usually goes to work, but this time it’s different; he’ll be (more) out of reach, most likely totally engrossed in the keynote speaker’s address. Translation: I will be on my own to fend off the panic attacks.

Over the past 15 years, he’s been there for me.  He’s learned how to relate to my panicky episodes, my lack of self-trust, my fear of abandonment, my issues with my social phobia, my fantastic imagination, etc.  He’s been there.

Lately, however, I see it changing.  His voice is, overall, getting louder.  He’s sympathy is dwindling.  Tonight, he told me my agoraphobia has made him a prisoner, too, just as it has made me.

I gasped.  My breathing stopped.  He had said the magic words I’d been dreading to hear.

I had never heard him so mean and unsympathetic.  He speaks as though he’s never heard of panic disorder before.  He says things like “That’s illogical.” And, “Yeah, and maybe some robbers will break into the house and murder you while a meteor hits.”  You know, things that a mad person yells.  He shouts that I should also worry that a plane may hit the house, just in case I hadn’t thought of it yet.

So, I am in new territory.  I hate being dependent upon him to eat, to have a job, to accompany me to the doctor and the shopping mall.  I hate myself for being so screwed up with these thoughts and phobias and horrific images.

I want him to travel even if I can’t join him.  I want him to go to this conference even though I will be here frozen in fear.

I can’t join him when I am down like I am now.  I just can’t.

But, can’t he be more sympathetic?  Less loud and mean when he speaks to me?  I gather he’s just up to his neck in frustration with my “problems.”  My never-ending fricking problems.  Yeah, I get it.  I just don’t think I would be as cold if my partner had what I had and I was as functioning as he.

Maybe I should let him be free.  I should let him find another partner who can do all the things I can’t do.  Maybe he’s already made the same decision. It really feels like he wants out.

I hope I can make it tomorrow and Tuesday, and Wednesday, and Thursday, and Friday without losing it.

Any of you who suffers with panic disorder and agoraphobia knows how I feel. Sometimes it’s better, sometimes it’s worse.

I am just in a worse part now.

I must remember it passes.  It always does.

If you are reading this during the week of June 8, 2009, please send me a little strength, if you have some to spare.

18 Responses to "Oh, Lovely Agoraphobia!"

Wowzers, i could have written that myself!

I don’t know whether you read my blog, but my ((husband)) has finally canned our marriage because he IS sick of being with an agoraphobic and he IS sick of not being able to do stuff, however, like you, would and have never stopped him from doing anything, in fact, for the last 2 years he’s been on holiday, he goes out with his mates and i don’t mind one bit.

My ((husband)) was never that supportive. He just saw me as lazy at times, i am sure – but i KNOW i am not that. Because he was always such a free spirit until he met me, i don’t think he realised was agoraphobia was OR is. It’s hard for anyone to deal with it. Its hard for us and the people around us. Luckily i didn’t depend on HIM for anything.

For the last 2 1/2 years my ((husband)) has done a job where it is IMPOSSIBLE for me to call him. There was no way of getting in touch until he finished.

I’ve been alone since last September, he moved out then. Being alone isn’t so bad. I don’t have one single person i could call if i panic – but i don’t even think about it. If i do feel anxious…then…i have to deal with it the best i can.

You know you’ll be fine because you have survived panic/anxiety a million times before..it just feels a bit shit while its happening, but YOU WILL GET THROUGH IT.

I can honestly totally get what you’re saying, i thought about letting my (dick head husband) go so many times, i wish i had now, because to know you’ve been dumped through no fault of your own is painful.

I am thinking of you and you know where i am if you want to chat :)

x

Hi HSP,

beautiful wonderful sweet lady! you have been missed.

Rough patch? I can relate to that. I’m currently hammering planks across the door and riding out the storm. In such times venturing out and fighting the hurricane is not the ideal thing to do. Agreed!

I read your last post too. I was amazed to see mention of words like swimming and yoga and hiking. A huge well done for doing these things, you are incredible!

Laying guilt on you is hardly fair. The ‘prisoner speech’ I’m certain is a standard one, we’ve heard it, we’ve believed it, we’ve thought it ourselves so many times. But despite the agony it causes us we don’t stop them from living their dreams. We would sit home with our grief and fear and let them travel the world if they wished. We are not selfish people by any means. We would make ourselves so low to suffer alone in order to not interfere with another’s freedom. You accept this, and you do deserve some respect and compassion right now.

You know already that you will cope during this week in spite of your terrific fear. You know how to deal with panic when and if it strikes. You know too that hours will pass and soon he will be back home. Do something that you enjoy? Be creative, write a poem, fill this wonderful blog with words, anything dear HSP to keep yourself peacefully amused.

If I had good advice I would be applying it myself. I wish I had better for you. A thousand warm wishes and a huge hug HSP. XX

hi sweet HSP…
I know you’re terrified, but you’ll find that you make it through alright…

My husband has pointed out that my immobility (I’m not agoraphobic but I’m physically disabled) keeps him from doing stuff too…

I literally forced him to go to a conference in New York last week because I didn’t want him to feel glued to me…

See if perhaps you can give your husband that too…I’m not justifying his meanness…there is no justifying that…but our partners do go through a lot and we know that too.

I love you.
You can call me if you want when you’re afraid.

As you know, I’m sort of in a similar position to your husband. Except that my wife and I have children and that creates a whole raft of other issues.

I’m ashamed to admit that at rare (fortunately) moments of stress/frustration, I have shouted similar things to my gentle spouse.

Then I get serious guilt…

I do mean the mean things I shout at that moment; but only at that moment. For the rest of the time I am extremely grateful that another person values me. I hope that your husband’s behaviour was a blip in an otherwise calm world.

I’m sure that you’ll survive this week. The anticipation is always worse than the reality, isn’t it?

Btw, I’ve always found bald ladies sexy. And you (from your picture) are no exception! Now, I’m not going to suggest to Marie that she dispose of her beautiful tresses, but if she was to lose them…it woldn’t bother me the slightest bit.

It’s good to see you blogging again, although I wish that the circumstances were better…

Best wishes for the next few days.

I hope that you’ve had a good week! I’m sorry he was being a total jerk. I know sometimes I’ve had similar things happen and have been so angry that the anger overrode the fear and I was just glad to have Mr. Bad Attitude out of the house.

Hopefully, Robert is right. Everyone is human, and this crap is frustrating for everyone.

Thank you, my sweet friends. I so appreciate your encouragement! I did make it through the week, but it wasn’t easy. Lots of panic attacks, and also lots of okay times, too.
I am glad it’s over.
But, I really want to get over this downturn. I am feeling housebound now more than ever.
I will make a plan with little steps to get outside. I’ll keep you posted.
Really, thank you all for your kind comments. {{{{hugs}}}}

It’s so good to hear from you again, it’s been a while.
When you feel like you are having a bad day while he’s gone maybe you can go the computer and just write.

Write just what comes to your mind, it will help so many other people out there, even when you wonder if anyone is reading it. I know sometimes I wonder too when I am in my icky days.

Hang in there (I know those words don’t make it all better), but I do mean it when I say I am thinking about you always.

Stef

Good advice, Stef. I plan on trying to write right now. I have no plan, I just need to express my inner agoraphobe. I really appreciate hearing from you; always :)

Hey there HSP,

I only found your blog very recently – it makes for very interesting and thought-provoking reading. I’ve been feeling very anxious lately, and it’s strangely comforting to read the account of someone else whose moods are not always their best friend. Thank you for that.

I hope you’re faring well at the moment, and will return to blogging soon. In your last entry you sound so afraid, and I really hope that things have improved for you since. Let us all know when you can.

Kat.
xxx

Will im not alone i suffer with agoraphoba panic attacks etc, going to give the linden method ago, hmm hope it works, i hate when people who dont suffer with any of these conditions just cheer up- i won’t to smack them on the head, they dont understand what it’s like hey@!

My dear sweet girl,
I too went thru agorophobia for about a year. I have complex PTSD, lived with a man who was my everything. I was completely dependent on him. He would go on a ski trip for a week and Id be left alone with my panic attacks. Try to get grounded, get your hands in the dirt. go to IMCW>org and listen to a dharma archive…VERY, VERY real talk basically about love and compassion. I cant reccomend it enuf. Its saves my Butt!!
Love,Light,Lisa

I hope you are doing better…I can’t imagine the pain you must be going through…I think it’s difficult to face any sort of abandonment from anyone…but it does get better. I think it’s important to NOT focus on whose fault it is..but rather try to collect your inner strength to hold yourself together… kind of promising yourself that you will get better because you do not want to go through such a pain anymore. To have someone call you out on your weakest point is kind of a betrayal! It’s my first time visiting your blog. you have encouraged me to start my own blog..as I too suffer from agoraphobia and general anxiety.

HSP- I wonder about you all the time. I read up on your flight course and your plane trip & grocery shopping….great job. I haven’t seen you post in a while. I hope you come back to your blog soon….really would love to get some advice from you.

Update on me: Well, I finally was able to get my doctor to to a c/o from Xanax to Valium. It started by crossover on 9/25/09, it was a direct c/o. I had gotten myself down to 2 .5mg Xanax a day but the up/down and full time work….was just not going to go well. So, I did a direct c/o from a total of 1mg Xanax to 20mg Valium. I started as I said on 9/25/09 to two doses of 10mg Valium. I only had one cheat day w/Xanax on that was on 9/26/09 and only a .25mg….haven’t touched a Xanax since. I am currently at 10mg V am and 7mg V pm. Feeling okay…much more level.

I so hope you stop in to your blog. I would love to ask you some questions about your taper…which is a distant memory to you know. You have my email…I really hope to hear from you.

Silvana

It’s been a while since you’ve written. How are you?

Hugs~

Hi, I too suffer from this! When I was reading your blog is sounded just like me! My husband is supportive of me but works out of state often on a pipeline and has a chronic health condition which I feel is what has brought on my anxiety and panic, he’s in pain pretty much every day of his life and I worry myself sick over him all the time. I have family around me that helps me through this but when they have things to do during the day, I tend to panic if I know they are not home for me to call them and I hate having to depend on them so much, I feel like I keep my mom and dad prisoner sometimes because they don’t want to go as much because they don’t want to leave me here alone. I have a hard time driving just 10 mins down the road afraid I may panic, I avoid shopping centers and I have even started avoiding church which is really affecting because I love going to church. Sometimes I just wish there was someone I knew that lived near me that was going through the same thing so that we could support each other and go shopping together without bothering my parents or sisters with their busy lives, I feel like such a burden to them! I do have to say though I don’t know what I’d do without my mom and dad, they are great and do so much for me when I need them. I am a stay at home mom with 2 great kiddo’s, my daughter is 15 and my son is 10 and I pray every day they don’t struggle with this also. It pretty much controls every aspect of your life if you let it. The doctor has tried me on several different meds and I’m always deathly scared to even swallow the first pill and then when I do and I feel the side affects I stop taking them. I did finally make myself try Tranxene, I hate taking pills but it has helped somewhat…I take 7.5 mg in the morning then 7.5 mg before bed. I’ve only been on them for about a month and I don’t want to take them no more than what I have to, I’m so afraid of getting addicted to them. I know it’s been a while sense you posted this but was hoping you will get my post and let me know how you are doing.

Dear HSP,

This comment is written on behalf of a bunch of psychology students from Malaysia and we recently read your article. We hope you are coping well and we wish you all the best in your future. =)

Stay sexy girlfriend. – Sarina

Live life with no regrets and hakuna matata! – Betty

Peace be with you. – Sya

I hope you will overcome your agoraphobia and be able to do all the cool things you used to do. Scuba-diving rocks! – Izzy

Keep fighting the good fight. – Sam

I hope you’re well. =) – Junita

Just be yourself. – Mr Wong

LOTS AND LOTS OF LOVE FROM SOUTH-EAST ASIA BABY!

sending you lots and lots of love. I truly feel sorry for you because support from your loved ones is so important. Harsh comments would trigger another panic attack for me. I suffer from situational claustrophobia and only today had the courage to write about it.

thank you so much for sharing your personal story…it helps …more than you know.

Welcome, bookjunkie, from the other side of the world!

Love your blog, by the way…. Just had to tell you that from the get go!

I can relate to your post on your experience with panic attacks to a T. I think your post is going to reach a completely different audience, and this is fantastic!!! Education (we hope) leads to compassion, understanding, and even better treatments.

Just remember that no matter if you’re panicking or not, your feet and hands and mouth can still lead you in the direction you need to go — in the direction of your values.

The biggest mistake I’ve made in the 20+ years of panic attacks was to start avoiding the things I love out of fear of having a panic attack in front of people.

I have stopped avoiding almost completely (still working on the flying part), but I am so liberated.

I could even call myself “in recovery” even though I still have panic attacks.

My husband’s been out of the country for two weeks. I have handled myself so well. I’ve had my moments of panic, sure. But, over all, I said, “SO what, it’s just panic. I have the right to panic right here and now, right here in the middle of the shopping mall if I want to….”

I have a right to live on this planet just as much as the next person.

So, keep on reading, keep on writing, keep on getting in those cars. Make room for the panic; show compassion for it. It really is trying to “protect” you from something, it’s just misguided.

Thank it, and keep moving forward, wobbly legs and all.

You seem like an outstanding person, panic or no! :)

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